What is PDA anyway?
PDA stands for Pathological Demand Avoidance. It is an unrecognized (as in DSM-5 – Diagnostic and Statistical Manual of the American Psychiatric Association – the bible for diagnosing ‘mental health’ conditions) form of autism.
Unrecognized?
Don’t let that one fool you. The DSM is more about how current society sees things than pure science. For instance, the DSM once listed homosexuality as a disease/disorder. When we now know that it is simply a variant of not just the humans but many other animals as well. Quite frankly that is how I see autism.
Back to the PDA story…
Actually, that is too big and complex. It would lead me away from my focus with this article. So, if you want the official jargon visit the PDA Society.
OK, now back to the Truth…as seen through the eyes of a parent whose PDA offspring:
- Has good social skills, including maintaining friendships, compassion, and even being an extrovert
- Meltdowns only two or three times per year
- Can do pretty much anything SHE wants to do.
In other words, is nothing like that ‘official’ profile of PDA.
Why?
Because, long ago, I realized that PanKwake’s PDA was a gift. Yes, a gift. To me and to society. PanKwake sees things more clearly than most people. To the heart of the matter. I even coined the phrase, Pathological Bullshit Avoidance to denote this.
It is not that she avoids ‘demands’. It is that she does not see the point of many rules that the rest of us just take for granted. Even, bathing, which for her is torture, because the feel of water on her skin can be actually painful. Sensory issues are one key reason that PDA does belong on the autism spectrum (if there is such a thing).
Basically, PDA is about an on-going war between the logical minds of PDAers like PanKwake who need to understand WHY they are being asked to do something and have that explanation make sense…and an antiquated society where schools and parents keep doing things that do not work for most children anyway.
PDAers are the canaries in the mines, telling us that these methods of indoctrination are not good for any child. They are the ones with the strength to fight back. Bottom line…
PDAers are not the problem…
We are!
Parents, schools, and society. The same ones that have destroyed this planet, enslaved humans to working for mega-rich in order to purchase stuff that ends up in landfills anyway…back to that cycle of destroying the planet…and its people.
PDAers see all that for what it is. They refuse to comply with dumb a$$ rules. They question everything. And that truly is a gift…one we need right now.
So, if you have been gifted with a PDAer, how do you parent her? What do you do to bring out her best? Enable her to reach her full potential and minimize the ‘negatives’?
You treat her like a human being. Not a child. Not some blank slate upon which you can write your brilliance as a parent or the chance to re-live your life, correcting all your mistakes. But as an individual with a mind and soul of her own.
You don’t try to parent. You mentor. What does that mean? Cambridge Dictionary gives a pretty good definition of mentor: to help and give advice to a younger or less experienced person.
You don’t tell her what to do. You explain, frankly, and sometimes brutally honest the situation. And you allow her to make the choice. Then you step back and let her handle the consequences…supporting her if necessary.
If you want respect, then you earn it…by giving it to her. This is often a deeply misunderstood problem with PDAers. Parents, schools, and society label them as ‘naughty’ that they don’t show ‘proper respect’. When in fact, respect is not something that can ever be demanded. That is fear of authority, not respect.
Will there be hiccups/challenges even if you do all that right? Yes! That is called life. Parenting. The bottom line is this…
You need to reframe your point of view on what that word means. Being a parent is not what society and schools say it is. Not if we want to have a world to leave for our children and grandchildren. We must all change how we see things…
And PDAers have been sent to guide us there…their logical, inquisitive, brilliant brains are just what humanity needs in this hour.
I thanks Fate and the goddess every day to have been entrusted with the privilege and gift of PanKwake. In my darkest moments, when I fear for the future of humanity and this planet, she gives me hope.
And that, folks, is the REAL truth about PDA.
(All photos used with fully informed consent and permission of PanKwake in keeping with her rights under the UN Convention on the Rights of the Child.)