I awoke this morning and like most days after checking on her it is was off to check emails. The very first one I notice is from one of my special needs home education groups…and it reads…A VERY Sad Day for Our Children. I opened it prepared to offer what support I could in whatever crisis this family faced….only to discover it was the ….. election results. This angers me on so many levels. Yes, our special guys and gals need all the help they can get. But what people seem to forget it is the VERY high price and low returns on that assistance.
If you missed it, read about our almost year long struggles with the ‘system’ here. In the end, we were bullied, lied to and had these people pressuring us to put PanKwake back into the very schools that had failed to protect her from bullies, failed to diagnose her autism, and treated us, her parents, like idiots and the enemy. We gave up…all we wanted was to be left alone.
As a result of all that time I had wasted I re-examined my life…
That little bit of extra money could never give us what we NEED, only what THEY want us to have.
The strings that come attached with it in terms of reporting and a revolving door of strangers in the life of a child with autism who experiences anxiety around new people anyway…was too high a price.
We are already stuck living in a city and a borough that is NOT what we want or need…but because of the system THEY will not help us…even though we could live somewhere else for half what they are paying here.
I have already been told by the HMRC that my chosen career path as a writer is not viable…that sent me into another of those tale spins.
The truth that no one wants to see is…if you want to save your child…yourself…it is up to YOU. I was reminded of this photo that I copied the other day from Facebook.
We know what our kids’ need…not the government…not the schools.
We know what works for them…not teachers or psychologists or social workers.
We are the only ones that can see past the labels to the bright and beautiful gifts they really are…to everyone else they are just numbers…1 in 88, £8250 for personal budget, £20K for special school place.
We know what’s best…
And we need to quit looking to others to save us. We need to save ourselves…and our kids.
And that does not change if it is Conservatives, Labour, even UKIP…for my Americans…Republican, Democrat or Libertarians. In the words of Ralph Waldo Emerson…
A political victory, a rise of rents, the recovery of your sick, or the return of your absent friend, or some other favorable event, raises your spirits, and you think good days are preparing for you. Do not believe it. Nothing can bring you peace but yourself. Nothing can bring you peace but the triumph of principles.
Is today a sad day for our children? Yes, because we are wasting time moaning about an election result instead of embracing the bold new world of opportunities which the Internet provides for us…and them.
One more positive quote…